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Himanshu Jain (Caregiver to his Mother)

Himanshu Jain (Caregiver to his Mother)

Himanshu Jain is a cancer caregiver to his mother, who was diagnosed with brain cancer in 1996. Himanshu was just 21 years old, and he could not even comprehend what was happening. She underwent surgery and radiation therapy as a part of the treatment. She also had a stroke during that time which left her completely bedridden. It was a very depressing moment for the whole family. Surprisingly, she came out of the paralysis after two years, but she lost her entire memory. She could convey her basic needs, and other than that, she could not memorise anything. She is happily living with her family right now, and Himanshu likes to give all the credit to his late father. He says, “My mother’s journey was not extraordinary, but her discipline and dedication kept her moving.”

Brain tumor surgery and recovery

We were staying in Rajasthan at that time. So, we took my mother to Ahmedabad for treatment. She underwent surgery and radiation therapy for around one and a half years. After that, she was completely cured for another two years. Then came a time when she was completely bedridden and unconscious. She was not able to do anything by herself. That was a big hit for all of us. We did not understand how to deal with this situation. She was a very active lady, taking care of everything at home. And then she was in such a situation that we could not understand how to manage it.

Paralysis, recovery and losing memory

My mother was paralysed. She came out of it around two months later. During this time, we did our best for her. We maintained a proper diet for her. We were very particular about her diet and hygiene. In 1998, she came out of that phase. But she lost her memory. She could not recognise anything. It was a challenging situation. She was able to express her need but not emotions. She used to say that she was hungry. She had a headache, but she was unable to show her feelings. She did not recognise even my father. We had to look at her and observe her behaviour to understand her feelings. There were some parameters to understand the possible reason for her particular behaviour.

 Discipline and dedication

Today after 25 years, she is with us. I will give this credit to my father. He managed everything single-handed. He devoted his entire life to taking care of my mother. It was his dedication and discipline that my mother is alright today. We follow a strict routine for her. In the last 15 years, there has not been any change in her diet and routine. These are two things that prolonged her life. Today she is not on any medication apart from thyroid and diabetes. She is not taking any medicine for cancer. We have not taken her for screening for the last ten years. She is leading a very normal life. We simply have to observe her activity nothing else.

Love and care

We need to look after a cancer patient with love and care. We have to manage and handle them the same way we do for babies. My kids and my wife are always around her, observing her activity. If we take care of them properly, they will live a painless quality of life. Before the corona period, my mother used to go outside for a walk twice a day along with a caretaker. She used to sit in sunlight for at least ten minutes to get Vitamin D from the natural source. We need to take care of these small thing to make the life of patient better.

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