ચેટ આયકન

વોટ્સએપ એક્સપર્ટ

બુક ફ્રી કન્સલ્ટ

સંદીપ કુમાર (ઇવિંગના સાર્કોમા કેન્સર સર્વાઇવર) સ્કાયઝ ધ લિમિટ

સંદીપ કુમાર (ઇવિંગના સાર્કોમા કેન્સર સર્વાઇવર) સ્કાયઝ ધ લિમિટ

25 વર્ષની ઉંમરે, સંદીપ કુમારે તેના Ewing's Sarcoma નિદાન અને કેન્સર સામેની લડાઈથી ઘણો લાંબો રસ્તો કાઢ્યો છે, તે માત્ર વિજયી જ નહીં, પણ મનમાં વધુ સ્થિતિસ્થાપક બન્યા છે. તેના ભાવનાત્મક રીતે પડકારરૂપ ભૂતકાળની યાદ અપાવતા, સંદીપને લાગે છે કે કઠોર હોવા છતાં, તેના અનુભવે તેને એક વ્યક્તિ તરીકે બદલી નાખ્યો છે.

Sandeep was born in Uttar Pradesh, and has an older brother and 2 younger sisters. Sandeeps father is a farmer, and his mother is a homemaker. All was going well, when suddenly one day Sandeep had severe pain in his right arm. Upon being examined by doctors in the nearby villages, one doctor from Gorakhpur told his family that if the hand was not amputated, Sandeep would die, quoting a total expense of Rs. 1,50,000/-. At the advice of his Mumbai-based uncle, Sandeeps family took him to the Tata Hospital. At this point, Sandeep had no knowledge about anything. His father, who was informed about the diagnosis, was distraught. In March 2007, at the tender age of 13, his son had been diagnosed with bone and soft tissue cancer, with the risk of losing his arm, and possibly his life.

https://youtu.be/GIyRawSZJ3M

Sandeeps chemotherapy treatment started at ACTREC. After the first 6 chemotherapy treatments, a surgery was done at the ટાટા મેમોરિયલ હોસ્પિટલ, and then followed up with 8 more કિમોચિકિત્સા સારવાર યુવાન સંદીપ સતત થાક અને ઉલ્ટી હોવા છતાં દરરોજ તેની આગળ વધતો હતો. તેની અંદર પણ ઘણો ગુસ્સો હતો, અને તેને ઊંઘવામાં તકલીફ પડતી હતી, ખાસ કરીને તેના કીમોથેરાપી સત્રના દિવસોમાં.

During his Mumbai stay, Sandeep faced challenges. The chemotherapy facility could not be accessed from his uncles home, and on the doctors recommendation, he was moved to ACTREC, where he completed his Ewing's Sarcoma treatment over the course of a year. At a VCare function, during his stay at the hostel, Sandeep met Vandanaji. The entire cost of Rs. 4,50,000/- for Sandeeps stay and Ewing's Sarcoma treatment was supported by the MSW Department of Tata Memorial Hospital. He also received help from the Prime Minister's Fund.

Throughout his Ewing's Sarcoma treatment, Sandeep was extremely warm towards his caregivers. Even before his surgery, he was smiling, and when asked why he wasnt scared by the doctor, he quickly chimed, No I am not scared, as I know I am in good hands. The doctors saved Sandeeps hand, and although initially he was unable to write because of the operation, સખત ફિઝીયોથેરાપી 6 મહિના માટે તેને તેની લેખન કુશળતા પુનઃપ્રાપ્ત કરવામાં મદદ કરી.

Sandeep credits the support of his family, and his doctors for helping him sail through this period with grace. He says that it was also his belief in himself that got him where he is today. The people from his village never thought that he would come back alive from Mumbai, because they perceived that cancer equaled death. But Sandeep had made up his mind that he was going to heal. After his year-long treatment was complete, Sandeep returned to his native place. It took a while for the villagers to get used to Sandeep with a bald head, and he was met with a lot of weird looks. He went on to complete his school studies and finished his 12th grade from UP state board. Sandeep is currently pursuing his graduate studies in Sociology via correspondence. His older brother is close to receiving a Bachelors degree in Technology, while his sisters are completing their undergraduate studies.

In 2015, Sandeep completed a certificate course in Professional Oncology Caregiver a 4-month training under the psychologists at Tata Memorial Hospital and also various organisations working in the field of cancer. This gave him the opportunity to go to all wards, and OPDs at the Tata Memorial Hospital.

After 2016, Sandeep attended events, conferences and workshops in pediatric oncology. In 2017 during a PHOSSCON meeting at Kolkata, he won a trip to Kerala in a debate on Childhood Cancershould it be included in disability act or not. He participated in the Tata Mumbai Marathon.

In 2018, he was awarded Victor award on behalf of V Care Foundation and We are Proud of You from Ugam. He led the survivors team during Change for Childhood Cancer in Maharashtra Car Rally.

In 2019, he was awarded the Best કેન્સર જાગૃતિ award by Cankids. He has been a part of Nukkad Natak about awareness. He manages the Maharashtra Cancer Helpline number.

Currently he is working with Cankids as a patient navigator and care coordinator for western region with 12 hospitals under him. He is also the leader for Teenage and Young Adult Childhood Cancer Survivor Support Group of Cankids. There are around 180 members, he plays the key role of giving motivation, emotional support, information, education support for hospitals and not for profits.

He is leading the campaign, Haq Ki Baatfrom Mumbai to Lucknow to UP for cancer awareness and advocacy for Childhood Cancer treatments to be available for children in India and it is their right not a privilege.

He was selected to go for The International Society of Pediatric Oncology 2019Childhood Cancer International Conference at Lyon, France. He presented research done on Childhood Cancer Survivors are learning and leading the research to manage their long term side effects. This was very well appreciated and he was given a standing ovation for the same. He was very happy as he could make many friends all over the worldJapan, Hongkong, South Korea, Ghana, Switzerland, France, South Africa, Purtgal, Spain, the United States, etc.

જાન્યુઆરી 2020 માં, તે કેન્સર જાગૃતિના સમર્થનમાં હાફ મેરેથોન (21Kms) માં ભાગ લઈ રહ્યો છે.

આજે સંદીપને વાંચન, બાઇકિંગ અને નવા મિત્રો બનાવવાનો શોખ છે. કેન્સરની સંભાળના ક્ષેત્રમાં કામ કરવા અંગેનો સંકલ્પ, તે હોસ્પિટલોમાં MSW વિભાગોમાં કામ કરવા માંગે છે, અને અભ્યાસ પૂર્ણ કર્યા પછી, તેમના જ્ઞાન અને અનુભવને શેર કરવા દર્દીઓ સુધી પહોંચવા માંગે છે. તેણે 2018 માં સમાજશાસ્ત્રમાં સ્નાતક પૂર્ણ કર્યું, હવે તે સમાજશાસ્ત્રમાં તેના અંતિમ વર્ષનો અભ્યાસ કરી રહ્યો છે. વધુમાં, તે ડેવલપમેન્ટ મેનેજમેન્ટમાં ઉચ્ચ અભ્યાસ અને પછી ડોક્ટરેટ (P.hd) માટે જવાનું વિચારી રહ્યો છે.

Sandeep stands convinced that if he could conquer cancer, no mountain is too high. Calmly, he quotes, Mushkile dil ki irade aazmati hai, Khwabo ko nigaho ke parde se hataathi hai! Mayus na ho apne irade na badlo taqdir kisi bhi waqt badal jati hai.

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