Symtom på hjärncancer

It all started with an extreme headache. When I bent down, I felt everything flowing downwards and then flowing backwards. I initially suspected it could be related to asthma, so I consulted a doctor. However, he attributed it to stress and recommended seeing a psychiatrist. Despite this, I was skeptical because I knew stress wasn't the cause.

Senare föreslog min pappa att gå till en neuroläkare. Men när jag gick till en neuroläkare hänvisade han mig till en neurokirurg. Så vi kom till Hyderabad, konsulterade en neurokirurg och gjorde min MRT. I rapporterna fann vi att det är en Hjärncancer tumör, men jag var omedveten om nyheten att jag hade fått diagnosen Grad 2 Ependymoma.

Behandling av hjärncancer

Jag blev glad och såg fram emot det Kirurgi för jag trodde att det kunde få stopp på min huvudvärk. Till och med min mamma såg fram emot operationen med samma tankesätt.

Läkarna hade diskuterat med min bror och inte med min mamma eller mig att jag skulle kunna förlora min syn, mina lemmar eller gå. Det kan vara något av det eller allt, och jag visste inte ens någon av dessa saker vid den tiden.

Det var en mycket aggressiv fyra och en halv timmes operation. Läkare tog nästan bort 99% av det, så mina ansiktsnerver, synnerver och allt blev påverkade. Jag förlorade min syn, min tal- och hörförmåga och kunde inte ens gå.

Every day in the hospital was a struggle. I didn't know if I would wake up each morning. I developed pneumonia and had to undergo a tracheostomy. With the tube in place, I couldn't open my mouth or speak for three and a half months. My mother was worried if I would ever regain the ability to speak.

My face was paralyzed; I couldn't move any part of it. I remember my brother asking me to smile, but I couldn't even convey that I was smiling inside because I couldn't move my lips. I couldn't express anything through my facial expressions, and I couldn't even write properly because of my impaired vision.

To make things worse, my creatinine used to shoot up to 6, and doctors were confused about whether to do dialysis or not because I already had a lung infection. So, they didn't take the risk and gave me medicines and increased my water intake. After one week, point by point, the creatinine level started to decrease.

Later, my radiation started. But I had surgery on the backside of my head, and there was a big bulge there. When I laid down for my radiation, I almost lost consciousness, so again the radiation would be canceled and rescheduled for some other day. Every week, doctors used to perform a lumbar puncture before radiation. Even the doctors were worried that too many lumbar punctures could affect my spine, but they had no other choice. That process was harrowing, so every day, I felt like I didn't want to go through with it, but somehow, I managed to complete my radiation.

One day I had a fall, and again, it created a very panic situation because I had undergone surgery and already had a big bump on my head. I was immediately taken for scans and other tests, but fortunately, nothing had gone wrong. Later, I was given physiotherapy sessions where I was taught how to sit on a chair, how to walk forward, backward, and sideways, how to swallow food. I had to relearn everything from scratch and used to ask my parents how to do simple things because I couldn't even remember those things.

Men till slut blev jag utskriven från sjukhuset och till och med min trakeostomi togs bort.

Tillbaka till Home

Även efter att jag kom hem var jag bara på min ryles-tub. Efter ett år kunde jag se, men jag kunde bara se suddiga bilder.

My eyes don't move sideways. I developed a squint after surgery, and because of that, I have double vision, even now. I used to bump into doors because I could see two doors, and I could not figure out which one was the original. Because I couldn't see correctly, I lost my balance and used to sway when I was walking or standing.

I underwent eye Surgery in 2015, but it was not successful. I had dry eyes and a dry mouth. I could have lost my corneas because of the dryness, but I used to put eye drops frequently to keep my eyes moist. Because of the dry mouth and absence of saliva, I couldn't eat spicy food; I'd lost a protective layer to my teeth, so they became so brittle that even if I bit a biscuit, my teeth would break off. I underwent 12 root canal treatments, and all my four wisdom teeth were removed.

Every dental procedure was more excruciating than my radiation. I used to cry silently on that dental chair every time. I couldn't even open my mouth. It had to be done in 2-3 sittings as I couldn't stand all that Pain in one sitting. Saliva plays a vital role in our body that no one is aware of or cares about, but I do now.

När jag fick strålning tappade jag mina ögonbryn och hår och fick fläckar på huvudet. Så när jag kom till min lägenhet blev folk bokstavligen rädda för att ens titta på mig.

My face had changed completely due to the Surgery. I still don't know how that happened. It took me around three years to accept my face because, by the age of 25, your brain registers how you look. When I look in the mirror, it's not me; it's someone else, and it took me a very long time to accept it. Anyways, I couldn't see correctly, but still, even if I looked in a mirror, I couldn't recognize myself. It used to take a moment to realize that okay, that's me.

Efter ansiktsförlamningen på grund av den första operationen för hjärncancer hade min ena sida förbättrats, men den andra sidan förbättrades inte alls, så mitt ansikte brukade släpa på ena sidan. Efter utskrivning, den sjukgymnastik för mitt ansikte pågick i två år. De brukade ge mig elektronisk stimulans för att stimulera mina nerver. Det var en annan smärtsam procedur.

It took a year for the bulge to go away, and the fluid in my head applied pressure on my optic nerves, causing them to swell. My neuro-ophthalmologist was concerned after looking at the scan reports because the nerves were swollen, and if the pressure increased, I could have lost my eyesight forever. He wanted my neurosurgeon to address the fluid, but my neurosurgeon was hesitant to perform any procedure because it would require placing a stand inside to drain the liquid, which could pose further risks if he needed to open my brain again. He couldn't take the risk of the Surgery and preferred to wait. I was very confused because both options were risky, and I am still waiting for the right time to undergo the Surgery and fully regain my eyesight.

After that, I wasn't happy staying at home with all these thoughts swirling around in my mind, so my brother approached an advertising agency, since that is what I had always wanted to do. He asked them as a favor if I could come to the office for 3-4 hours to boost my morale. They were such wonderful human beings that they agreed. Despite the paralysis, I wasn't able to sit, walk, talk, or even see properly, but still, they decided to let me in, and I am still working with them in the HR department.

I can't do what I want to do, even basic things like playing badminton or running or walking like everyone else. I love playing badminton, but now I can't because I cannot estimate or judge correctly, and it gives me a kind of bumpy feeling in the head and results in a headache. I can't step out on roads because I can't see properly. But I don't want to look at it that way; I am fine, and I am going to do it. I am never going to give up; I am not accepting defeat.

Min motivation genom min resa mot hjärncancer

Jag får min motivation från min familj, läkare och sjuksköterskor. Jag hade inte kunnat göra någonting utan dem. Varje ögonblick, varje sekund jag var och kämpar fortfarande, men jag vill inte ge upp för familjens skull. Jag var bara 25 när jag fick diagnosen hjärncancer - ependymom. Jag hade många fler drömmar och visioner av mitt liv. Jag planerade min utbildning. Jag ville ha ett företag, och jag brukade berätta för mina vänner att de börjar läsa tidningen, och en dag kommer du definitivt att läsa en artikel om att jag är en framgångsrik affärskvinna. Att vara en framgångsrik affärskvinna var min dröm.

When I was on a wheelchair or stretcher, I used to look around at people in the hospital, all of my age, smiling, walking, doing everything, and I used to ask myself why I am like this? But now, I need to get over all these. I need to go and chase my dreams. Now, I want to have a happy and healthy life, and I wish that for everyone. Only if you have health, you can do anything. I see people running behind material possessions, but they don't realize that they are doing so, putting their health at risk.

I used to sketch. I love painting, and I do pencil sketching. Even without proper vision, I wanted to do something for my doctor, so I made his sketch. I also used to play the guitar. My brother used to take me out on the hospital campus so that I could spend some time in greenery. All these things used to relax my mind amidst all the chaos. Initially, I was not fond of going to the top floor of the hospital to watch the view, but gradually, that became one of my most favorite parts of the day for which I used to wait for my brother.

Jag fick så mycket självförtroende efter att ha gått till kontoret. Ingen diskriminerar mig där; alla uppmuntrar mig.

Mina lärdomar

I believe that life doesn't challenge you with things you can't handle. It only gives you whatever you can handle. Many miracles have happened in my life. I have learned to be positive. I don't complain; instead, I count my blessings that I have an amazing family and got a fantastic set of doctors.

I believe that life doesn't challenge you with things you can't handle. It only gives you whatever you can handle. Many miracles have happened in my life. I have learned to be positive. I don't complain; instead, I count my blessings that I have an amazing family and got a fantastic set of doctors.

Avskedsmeddelande

Ge aldrig upp, se inte på den negativa sidan och bli aldrig demotiverad. Det är ditt liv; du måste ta itu med det. Tillåt aldrig någon att ge sympati för dig eller gråta framför dig eftersom det kommer att försvaga dig. Demotivera inte dig själv och låt inte din familj bli demotiverad. Du kommer att ta dig igenom detta. Sparka cancer ur din kropp.

Vårdgivare ska också vara positiva. Tillåt aldrig människor som bara kommer för att ge sympati, för i slutet av dagen är det bara du och dina nära och kära. Uteslut alla skräp från ditt liv.

Nyckelpunkter från Keerthana Thriveedhis helande resa

• Allt började med en extrem huvudvärk. När jag brukade böja mig ner, brukade jag känna att allt flyter nedåt och sedan flyter bakåt. Jag trodde att det kunde vara något astma-relaterat problem, så jag konsulterade en läkare, men han trodde att allt berodde på stress. Efter att ha rådfrågat några fler läkare fick jag diagnosen Grad 2 Ependymoma.
• Jag genomgick strålning och opererades för min hjärncancertumör, men den operationen var mycket aggressiv. Det påverkade mina ansiktsnerver, synnerver, jag kunde inte se ordentligt, jag fick en kisning och det fanns många fler biverkningar.
• Efter operationen förändrades mitt ansikte helt. Jag kan inte ens känna igen mig själv. Det tog tre år för mig att acceptera mitt ansikte. Jag kunde inte ens göra de grundläggande sakerna jag vill, men hellre än att klaga, föredrar jag att räkna mina välsignelser. Jag har fantastisk familj och läkare; utan deras stöd hade jag inte kunnat göra någonting.
• Ge aldrig upp, se inte på den negativa sidan och bli aldrig demotiverad. Det är ditt liv; du måste ta itu med det. Tillåt aldrig någon att ge sympati för dig eller gråta framför dig eftersom det kommer att försvaga dig. Demotivera inte dig själv och låt inte din familj bli demotiverad. Du kommer att ta dig igenom detta. Släng cancer ur din kropp.

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