ڊاڪٽر جونيا ڊيبورا (هوڊڪن جي لمفوما ڪينسر سروائيور)
زندگي اسان کي چيلينج ڪرڻ جو هڪ غير معمولي طريقو آهي جڏهن اسان گهٽ ۾ گهٽ ان جي اميد رکون ٿا، اسان جي لچڪ ۽ طاقت کي امتحان ۾ وجهي.
It all started with an extreme headache. When I bent down, I felt everything flowing downwards and then flowing backwards. I initially suspected it could be related to asthma, so I consulted a doctor. However, he attributed it to stress and recommended seeing a psychiatrist. Despite this, I was skeptical because I knew stress wasn't the cause.
بعد ۾، منهنجي پيء هڪ نيورو فزيشن ڏانهن وڃڻ جي صلاح ڏني. پر جڏهن مان نيورو فزيشن وٽ ويس ته هن مون کي نيورو سرجن حوالي ڪيو. سو اسان حيدرآباد آياسين، هڪ نيورو سرجن سان صلاح ڪئي، ۽ منهنجو ايم آر آئي ڪرايو. رپورٽن ۾، اسان اهو محسوس ڪيو ته اهو هڪ آهي دماغي ڪينسر ٽيومر، پر مون کي خبر نه هئي ته مون کي گريڊ 2 Ependymoma سان تشخيص ڪيو ويو آهي.
مان خوش ٿيس ۽ منتظر هوس جراحي ڇاڪاڻ ته مون سوچيو ته اهو منهنجي سر درد کي روڪي سگهي ٿو. منهنجي ماءُ به ساڳي ذهنيت سان سرجري جي منتظر هئي.
ڊاڪٽرن منهنجي ماءُ يا مون سان نه پر منهنجي ڀاءُ سان ڳالهه ٻولهه ڪئي هئي ته مان پنهنجي اکين، عضون يا هلڻ کان محروم ٿي وڃان. اهو ٿي سگهي ٿو ان مان ڪو به يا اهو سڀ، ۽ مون کي ان وقت انهن شين مان ڪا به خبر نه هئي.
ساڍا چار ڪلاڪ جي سرجري ڏاڍي جارحاڻي هئي. ڊاڪٽرن ان مان 99 سيڪڙو لڳ ڀڳ ختم ڪري ڇڏيا، ان ڪري منهنجا منهن جا اعصاب، نظري اعصاب ۽ هر شيءِ متاثر ٿي وئي. مون پنهنجي اکين جي روشني، منهنجي ڳالهائڻ ۽ ٻڌڻ جي صلاحيت وڃائي ڇڏيو، ۽ اڃا به هلي نه سگهيو.
Every day in the hospital was a struggle. I didn't know if I would wake up each morning. I developed pneumonia and had to undergo a tracheostomy. With the tube in place, I couldn't open my mouth or speak for three and a half months. My mother was worried if I would ever regain the ability to speak.
My face was paralyzed; I couldn't move any part of it. I remember my brother asking me to smile, but I couldn't even convey that I was smiling inside because I couldn't move my lips. I couldn't express anything through my facial expressions, and I couldn't even write properly because of my impaired vision.
To make things worse, my creatinine used to shoot up to 6, and doctors were confused about whether to do dialysis or not because I already had a lung infection. So, they didn't take the risk and gave me medicines and increased my water intake. After one week, point by point, the creatinine level started to decrease.
Later, my radiation started. But I had surgery on the backside of my head, and there was a big bulge there. When I laid down for my radiation, I almost lost consciousness, so again the radiation would be canceled and rescheduled for some other day. Every week, doctors used to perform a lumbar puncture before radiation. Even the doctors were worried that too many lumbar punctures could affect my spine, but they had no other choice. That process was harrowing, so every day, I felt like I didn't want to go through with it, but somehow, I managed to complete my radiation.
One day I had a fall, and again, it created a very panic situation because I had undergone surgery and already had a big bump on my head. I was immediately taken for scans and other tests, but fortunately, nothing had gone wrong. Later, I was given physiotherapy sessions where I was taught how to sit on a chair, how to walk forward, backward, and sideways, how to swallow food. I had to relearn everything from scratch and used to ask my parents how to do simple things because I couldn't even remember those things.
پر پوءِ آخرڪار، مون کي ڪاميابيءَ سان اسپتال مان فارغ ڪيو ويو، ۽ ايستائين جو منهنجي tracheostomy به هٽائي وئي.
گهر اچڻ کان پوءِ به مان پنهنجي رائيلس ٽيوب تي ئي هئس. هڪ سال کان پوء، مون کي ڏسڻ جي قابل ٿي ويو، پر مون کي صرف ڌمڪيون تصويرون ڏسي سگهيو.
My eyes don't move sideways. I developed a squint after surgery, and because of that, I have double vision, even now. I used to bump into doors because I could see two doors, and I could not figure out which one was the original. Because I couldn't see correctly, I lost my balance and used to sway when I was walking or standing.
I underwent eye Surgery in 2015, but it was not successful. I had dry eyes and a dry mouth. I could have lost my corneas because of the dryness, but I used to put eye drops frequently to keep my eyes moist. Because of the dry mouth and absence of saliva, I couldn't eat spicy food; I'd lost a protective layer to my teeth, so they became so brittle that even if I bit a biscuit, my teeth would break off. I underwent 12 root canal treatments, and all my four wisdom teeth were removed.
Every dental procedure was more excruciating than my radiation. I used to cry silently on that dental chair every time. I couldn't even open my mouth. It had to be done in 2-3 sittings as I couldn't stand all that Pain in one sitting. Saliva plays a vital role in our body that no one is aware of or cares about, but I do now.
جڏهن مون کي تابڪاري هئي، مون پنهنجي ابرو ۽ وار وڃائي ڇڏيو ۽ منهنجي مٿي تي پيچ هئا. تنهن ڪري، جڏهن آئون پنهنجي اپارٽمنٽ ۾ آيس، ماڻهو لفظي طور تي مون کي ڏسڻ کان ڊڄي ويا.
My face had changed completely due to the Surgery. I still don't know how that happened. It took me around three years to accept my face because, by the age of 25, your brain registers how you look. When I look in the mirror, it's not me; it's someone else, and it took me a very long time to accept it. Anyways, I couldn't see correctly, but still, even if I looked in a mirror, I couldn't recognize myself. It used to take a moment to realize that okay, that's me.
دماغ جي ڪينسر جي شروعاتي سرجري سبب چهري جي فالج کان پوءِ، منهنجو هڪ پاسو بهتر ٿي چڪو هو، پر ٻيو پاسو بلڪل به نه سڌريو هو، ان ڪري منهنجو چهرو هڪ پاسي کان لڪل هوندو هو. خارج ٿيڻ کان پوء، منهنجي منهن جي فزيوٿراپي ٻن سالن تائين جاري رهي. اهي منهنجي اعصاب کي متحرڪ ڪرڻ لاء مون کي برقي محرک ڏيندا هئا. اهو هڪ ٻيو دردناڪ عمل هو.
It took a year for the bulge to go away, and the fluid in my head applied pressure on my optic nerves, causing them to swell. My neuro-ophthalmologist was concerned after looking at the scan reports because the nerves were swollen, and if the pressure increased, I could have lost my eyesight forever. He wanted my neurosurgeon to address the fluid, but my neurosurgeon was hesitant to perform any procedure because it would require placing a stand inside to drain the liquid, which could pose further risks if he needed to open my brain again. He couldn't take the risk of the Surgery and preferred to wait. I was very confused because both options were risky, and I am still waiting for the right time to undergo the Surgery and fully regain my eyesight.
After that, I wasn't happy staying at home with all these thoughts swirling around in my mind, so my brother approached an advertising agency, since that is what I had always wanted to do. He asked them as a favor if I could come to the office for 3-4 hours to boost my morale. They were such wonderful human beings that they agreed. Despite the paralysis, I wasn't able to sit, walk, talk, or even see properly, but still, they decided to let me in, and I am still working with them in the HR department.
I can't do what I want to do, even basic things like playing badminton or running or walking like everyone else. I love playing badminton, but now I can't because I cannot estimate or judge correctly, and it gives me a kind of bumpy feeling in the head and results in a headache. I can't step out on roads because I can't see properly. But I don't want to look at it that way; I am fine, and I am going to do it. I am never going to give up; I am not accepting defeat.
مون کي منهنجي خاندان، ڊاڪٽرن ۽ نرسن کان منهنجي حوصلا افزائي حاصل آهي. مان انهن کان سواءِ ڪجهه به نه ڪري سگهيس. هر پل، هر سيڪنڊ مان هو، ۽ اڃا تائين جدوجهد ڪري رهيو آهيان، پر مان خاندان جي خاطر هارائڻ نٿو چاهيان. مان صرف 25 سالن جي هئس جڏهن مون کي دماغ جي ڪينسر جي تشخيص ٿي هئي - Ependymoma. منهنجي زندگيءَ جا ٻيا به ڪيترائي خواب ۽ خواب هئا. مون پنهنجي تعليم جي منصوبابندي ڪئي. مون کي ڪاروبار ڪرڻ جي خواهش هئي، ۽ مان پنهنجن دوستن کي چوندو هوس ته اخبار پڙهڻ شروع ڪريو، ۽ هڪ ڏينهن توهان ضرور منهنجي هڪ ڪامياب ڪاروباري عورت بابت مضمون پڙهندا. هڪ ڪامياب ڪاروباري عورت ٿيڻ منهنجو خواب هو.
When I was on a wheelchair or stretcher, I used to look around at people in the hospital, all of my age, smiling, walking, doing everything, and I used to ask myself why I am like this? But now, I need to get over all these. I need to go and chase my dreams. Now, I want to have a happy and healthy life, and I wish that for everyone. Only if you have health, you can do anything. I see people running behind material possessions, but they don't realize that they are doing so, putting their health at risk.
I used to sketch. I love painting, and I do pencil sketching. Even without proper vision, I wanted to do something for my doctor, so I made his sketch. I also used to play the guitar. My brother used to take me out on the hospital campus so that I could spend some time in greenery. All these things used to relax my mind amidst all the chaos. Initially, I was not fond of going to the top floor of the hospital to watch the view, but gradually, that became one of my most favorite parts of the day for which I used to wait for my brother.
آفيس وڃڻ کان پوءِ مون کي تمام گهڻو اعتماد مليو. اتي ڪو به مون سان تعصب نٿو ڪري. هرڪو مون کي حوصلا افزائي ڪري ٿو.
I believe that life doesn't challenge you with things you can't handle. It only gives you whatever you can handle. Many miracles have happened in my life. I have learned to be positive. I don't complain; instead, I count my blessings that I have an amazing family and got a fantastic set of doctors.
I believe that life doesn't challenge you with things you can't handle. It only gives you whatever you can handle. Many miracles have happened in my life. I have learned to be positive. I don't complain; instead, I count my blessings that I have an amazing family and got a fantastic set of doctors.
ڪڏهن به هار نه ڏيو، منفي طرف نه ڏسو، ۽ ڪڏهن به مايوس نه ٿيو. اها توهان جي زندگي آهي؛ توهان کي ان سان معاملو ڪرڻو پوندو. ڪڏهن به ڪنهن کي اجازت نه ڏيو ته توهان سان همدردي ڪري يا توهان جي سامهون روئي ڇو ته اهو توهان کي ڪمزور ڪندو. پنهنجو پاڻ کي مايوس نه ڪريو ۽ پنهنجي خاندان کي به مايوس ٿيڻ نه ڏيو. توهان هن ذريعي حاصل ڪندا. ڪَڪَ ڪينسر توهان جي جسم کان ٻاهر.
سنڀاليندڙن کي پڻ مثبت هجڻ گهرجي. ماڻهن کي ڪڏهن به اجازت نه ڏيو جيڪي صرف همدردي ڏيڻ لاء ايندا آهن، ڇاڪاڻ ته، ڏينهن جي آخر ۾، اهو صرف توهان ۽ توهان جا پيارا آهن. پنھنجي زندگيءَ مان سڀ شيون ڪڍي ڇڏ.
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پرورش اميد ۽ شفا
ZenOnco سان
گوگل راند انڊيا تي
پرورش اميد ۽ شفا
ZenOnco سان
گوگل راند انڊيا تي
