Questions to ask about Neuroendocrine Tumors (NETs)

It is essential for the patients to have honest, open discussions with the doctor or the cancer care team. The patient should ask any question, no matter how minor it might seem. Here are some questions patients with NET might want to ask:

Common Questions to be asked by patients to the healthcare team

  • Where are the NETs located?
  • What kinds of tests should be performed for the detection of NETs?
  • What treatments are available to the patients for NETs?
  • How does NETs affect the quality of the patient’s life?
  • How many different types of NETs are there?
  • Which type of NETs is more fatal?
  • Which stage is cancer? What does this indicate?
  • Is my cancer curable? If yes, then what are the chances of a cure? If not, then can it be kept under control?
  • Do I need other tests to decide on treatment?
  • What are my treatment options? Which one would you recommend?
  • Do I need to get a second opinion before starting treatment? Can you recommend a doctor or cancer centre?
  • How soon should I start treatment?
  • How can I prepare for treatment?
  • How long does the treatment last?
  • What are the short-term side effects of the treatment? Can you do something about them?
  • What are the possible long term side effects?
  • Can I have children after treatment? Can I do something about it?
  • How may treatment affect my daily activities?
  • How do I know that the treatment is working?
  • Is there anything I can do to manage the side effects?
  • What side effects or symptoms should I look for and report immediately?

Questions to ask about having radiation therapy

  • Which radiation therapy would you recommend? Why?
  • How long does this treatment take?
  • What area are you planning to treat?
  • What is the purpose of this treatment?
  • What side effects are expected during treatment?
  • What are the possible long-term consequences of radiation therapy?
  • How can I prevent side effects?
  • Who should I contact about side effects? And how soon?
  • What specific techniques would you use to reduce the risk of late treatment?

Questions to ask about planning follow-up care

  • What type of follow-up will be required after treatment?
  • What are the chances of cancer relapse? Should I look for any particular signs or symptoms?
  • What symptoms should I pay attention to?
  • What are the additional tests required, and how often?
  • How do I know if cancer has recurred? If so, what are my chances?
  • What are the long-term side effects of my cancer treatment?
  • Who will guide my future treatment?
  • How do I get the Treatment Summary and Survival Management Plan to be kept in my record?
  • What support services options are available to me and for my family?