Survivorship of Childhood Central Nervous System Tumors

Executive Summary

Survivorship begins immediately after the diagnosis of childhood central nervous system tumor. The individuals under treatment and whose disease conditions are cured after the treatment are referred to as the cancer survivors. Survival is considered one of the most challenging aspects of central nervous system tumors among children, as every child has unique conditions as per the disease’s severity. The survivors have experience emotions of concern, relief, remorse, and terror during their cancer journey. After undergoing central nervous system tumor treatment, the survivors have survived with, though, and beyond the tumor diagnosis.

Patients and their families may experience powerful emotions after the treatment, including excitement, concern, relief, guilt, and dread. Coping with such emotional distress has been known to be the primary goal of survivorship. Recognizing the difficulties that your family is experiencing, solution-oriented thinking, requesting and accepting help from others, and feeling at ease with the course of action that the family takes are some of the most common coping effective necessitates. The treatment survivorship serves as a solid motivation to initiate healthy changes in lifestyle and maintain good health and live a cancer-free life.

Survivorship in Childhood Central Nervous System Tumor

Central Nervous System Tumor Survivorship can have different meanings for different people. But commonly, it refers to;

  • Having no signs of cancer post-treatment
  • Cancer survivorship initiates from the moment of diagnosis and continues during treatment and throughout a person’s life.

Survivorship of Central Nervous System tumor is the most complicated part of cancer as it is different for each person. Some people get cancer treatment for a long time to cure and prevent a recurrence, While some treat cancer as a chronic disease.

Central Nervous System tumor survivors usually experience a mixture of strong feelings, joy, guilt, concern and fear. Some people start to appreciate life after cancer diagnosis and accept themselves, while others become uncertain about their health and vitality.

Support groups are present for the parents of children diagnosed with Central nervous system tumors ​1​. This provides you with an opportunity to talk with people who have had similar first-hand experiences. 

Relationships formed with the cancer care team impart a sense of security during treatment, and people miss this source of support. This can be especially true when new worries and challenges surface over time, such as late treatment effects, emotional challenges including fear of recurrence, sexual health and fertility concerns, and financial and workplace issues. Every Central Nervous System tumor survivor has individual problems and challenges ​2​. An excellent first step is recognizing your fears and talking about them with any challenge.

Effective Coping Requires the following:

  • Thinking through solutions
  • Understanding the challenge, you are facing.
  • Feeling comfortable with the action you choose
  • Asking for the support of others

Children who had brainstem glioma or Central Nervous System tumor can improve the quality of their future by following instructions for good health into and through adulthood, such as 

  • Limiting alcohol
  • Not smoking
  • Managing stress
  • Eating well

Regular physical activity can help reconstruct your strength and energy level. The health care team can provide an appropriate exercise plan based upon your needs, physical abilities, and fitness level for Central Nervous System tumor.


  1. 1.
    Armstrong GT. Long-term survivors of childhood central nervous system malignancies: The experience of the Childhood Cancer Survivor Study. European Journal of Paediatric Neurology. Published online July 2010:298-303. doi:10.1016/j.ejpn.2009.12.006
  2. 2.
    Tsui K, Gajjar A, Li C, et al. Subsequent neoplasms in survivors of childhood central nervous system tumors: risk after modern multimodal therapy. Neuro-Oncology. Published online November 13, 2014:448-456. doi:10.1093/neuonc/nou279