Executive Summary
Treatments of childhood acute myeloid leukemia result in causing various side effects and changes to the patient’s body. The results of treatment show variations among the patients. And so, the same treatment strategy used for a particular disease condition can have different effects. Hence, it is difficult to predict the outcome and impact of a specific treatment. Therefore, coping-up procedures are adopted to mitigate the treatment’s side effects. Open communication with the expert regarding new signs or symptoms experienced by the patients helps plan ways to manage and relieve these symptoms and side effects effectively.
The patients seek professional therapies to mitigate the adverse emotional impacts of childhood acute myeloid leukemia treatment. Furthermore, the general physical side effects of each treatment option for early-stage and locally advanced childhood acute myeloid leukemia can be addressed by adopting supportive or palliative care provided by the healthcare team. Hence, patients and their families are motivated to communicate with the medical team about their financial concerns. There are several services in particular that help patients manage side effects by treating childhood acute myeloid leukemia. Caregivers also play an important role in caring for a person with childhood acute myeloid leukemia. Effective patient communication with the healthcare team regarding the side effects is also important.
Coping with Treatment of Childhood Acute Myeloid Leukemia
A cancer diagnosis can be overburdening, but you can find ways to cope with stress and uncertainty with time.
Whether chemotherapy or radiotherapy, every cancer treatment has its side effects that can cause changes in the body, either physically or mentally. People do not encounter the same side effects even though they receive the same treatment because everybody responds differently.
Coping with physical side effects
Communication with your health care team about how you feel is very important, so they know any new side effects or changes in the existing ones. If your health care team knows about how you are feeling, they can help relieve and manage your side effects to make you feel more comfortable and prevent the side effects from worsening 1.
However, sometimes, physical side effects can stay after treatment ends, which are long-term side effects. The side effects that occur months or years after treatment are called late effects. In addition, treatment of long-term side effects and late effects is essential for survivorship care.
Coping with emotional side effects
After cancer diagnosis, you may experience emotional and social effects that include dealing with difficult emotions, such as sadness, anxiety, anger, or managing your stress level. Sometimes, people find it challenging to convey their feelings to their loved ones. Talking to an oncology social worker, counsellor can help them develop more effective coping methods and talking about cancer 2.
Coping with cancer cost
Cancer treatment can generally be costly. Therefore, it can become a reason for stress and anxiety for the family and a person with cancer. Cancer cost includes treatment costs and unplanned expenses related to the care. The high medical care cost stops some people from completing their cancer treatment plan, which puts their health and life at risk. And so, patients and their families must talk about financial concerns with a healthcare team member.
Caring for a loved one with cancer
A caregiver is a person that plays a vital role in taking care of a person with cancer. A family member or friend can be a caregiver providing physical, practical, and emotional support to patients, even if they live far away. The responsibility of caregivers may include:
- Giving medications
- Providing support
- Helping manage symptoms and side effects
- Talking with the health care team
- Assisting with meals
- Coordinating medical appointments
- Providing a ride to and from appointments
- Handling insurance and billing issues
- Helping with household chores
Taking with your Health care team about the side effects
- Which side effects are most likely to happen?
- What can be done to prevent or relieve them?
- When are they likely to happen?
Always make sure to tell your health care team about any side effects that happen during treatment and afterwards, too. Inform them even if you do not think the side effects are severe. This discussion should include the physical, emotional, social, and financial impact of a cancer diagnosis 3.
References
- 1.Tremolada M, Tasso G, Incardona RM, et al. Pain Coping Strategies in Pediatric Patients with Acute Leukemias in the First Month of Therapy: Effects of Treatments and Implications on Procedural Analgesia. Cancers. Published online March 14, 2022:1473. doi:10.3390/cancers14061473
- 2.Nazari S, Koupaei M, Shafiee A, et al. Emotional/Behavioral problems in children with acute lymphoblastic leukemia: a case-control study. Int J Hematol Oncol Stem Cell Res. 2014;8(2):14-20. https://www.ncbi.nlm.nih.gov/pubmed/24800034
- 3.Grover S, Rina K, Malhotra P, Khadwal A. Caregiver Burden in the Patients of Acute Myeloblastic Leukemia. Indian J Hematol Blood Transfus. Published online January 3, 2019:437-445. doi:10.1007/s12288-018-1048-4