Survivorship begins after the disease (childhood acute myeloid leukemia) is diagnosed. People who have been taking treatments and whose disease condition has been cured post-treatment are also considered survivors. Cancer survivors can experience a mix of emotions. They may also portray strong feelings like relief, joy, fear, concern, or guilt. Survivors can feel stressed once their frequent visits to the hospital and meetings with the health care team end. Furthermore, they will begin to experience a lack of security or support, as the relationship built with the health care team provides them with a sense of support, comfort and protection.
Coping with such emotional distress has been known to be the primary goal of survivorship. Recognizing the difficulties your family is experiencing, solution-oriented thinking, requesting and accepting help from others are some of the most common coping necessities. Patients with childhood acute myeloid leukemia can improve their future quality by following instructions for good health into and through adulthood, such as limiting alcohol, not smoking, managing stress, and eating well. Hence, the treatment survivorship serves as a solid motivation to initiate healthy changes in lifestyle and maintain good health and live a cancer-free life.
Survivorship for Childhood Acute Myeloid Leukemia
Survivorship can have different meanings for different people. But commonly, it refers to;
- Having no signs of cancer post-treatment
- Cancer survivorship initiates from the moment of diagnosis and continues during treatment and throughout a person’s life.
Survivorship is the most complicated part of cancer as it is different for each person. Some people get cancer treatment for a long time to cure and prevent a recurrence, While some treat cancer as a chronic disease 1.
Survivors usually experience a mixture of strong feelings, joy, guilt, concern and fear. Some people start to appreciate life after cancer diagnosis and accept themselves, while others become uncertain about their health and vitality. Support groups are present for people with AML. This also provides you with an opportunity to talk with people who have had similar first-hand experiences.
Relationships formed with the cancer care team impart a sense of security during treatment, and people miss this source of support. This can be especially true when new worries and challenges surface over time, such as late treatment effects, emotional challenges including fear of recurrence, and financial and workplace issues. While, every survivor has individual problems and challenges, 2 an excellent first step is recognizing your fears and talking about them with any challenge.
For Effective Coping
- Thinking through solutions
- Understanding the challenge you are facing
- Feeling comfortable with the action you choose
- Asking for the support of others
People with AML can improve the quality of their future by following instructions for good health into and through adulthood, such as
- Avoid drinking and smoking
- Managing stress
- Eating well
Regular physical activity can help reconstruct your strength and energy level. The health care team can also provide an appropriate exercise plan based upon your needs, physical abilities, and fitness level 3.
- 1.Leung W, Hudson MM, Strickland DK, et al. Late Effects of Treatment in Survivors of Childhood Acute Myeloid Leukemia. JCO. Published online September 18, 2000:3273-3279. doi:10.1200/jco.2000.18.18.3273
- 2.Stefanski KJ, Anixt JS, Goodman P, et al. Long-Term Neurocognitive and Psychosocial Outcomes After Acute Myeloid Leukemia: A Childhood Cancer Survivor Study Report. JNCI: Journal of the National Cancer Institute. Published online August 14, 2020:481-495. doi:10.1093/jnci/djaa102
- 3.Kiem Hao T, Van Ha C, Huu Son N, Nhu Hiep P. Long-Term Outcome of Childhood Acute Myeloid Leukemia: A 10-Year Retrospective Cohort Study. Pediatric Reports. Published online April 7, 2020:8486. doi:10.4081/pr.2020.8486