Survivorship begins immediately after the diagnosis of cancer. The individuals under treatment and whose disease conditions are cured after the treatment are referred to as the cancer survivors. Survival is considered one of the most challenging aspects in the case of a brain tumor, as everyone has unique conditions as per the disease’s severity. The survivors have experience emotions of concern, relief, remorse, and terror during their cancer journey. After undergoing brain tumor treatment, the survivors have survived with, through, and beyond the tumor diagnosis.
Patients and their families may experience powerful emotions after the treatment, including excitement, concern, relief, guilt, and dread. Coping with such emotional distress has been known to be the primary goal of survivorship. Recognizing the difficulties that your family is experiencing, solution-oriented thinking, requesting and accepting help from others, and feeling at ease with the course of action that the family takes are some of the most common coping effective necessitates. The treatment survivorship serves as a solid motivation to initiate healthy changes in lifestyle and maintain good health and live a cancer-free life.
Survivorship for Brain Tumors
Survivorship of Brain Tumor can have different meanings for different people. But commonly, it refers to;
- Having no signs of cancer post-treatment
- Cancer survivorship initiates from the moment of diagnosis and continues during treatment and throughout a person’s life.
Survivorship of Brain Tumor is known to be the most complicated part of cancer as it is different for each person 1. Some people get cancer treatment for a long time to cure and prevent a recurrence, While some treat cancer as a chronic disease.
Survivors of Brain Tumor usually experience a mixture of strong feelings, joy, guilt, concern and fear. Some people start to appreciate life after cancer diagnosis and accept themselves, while others become uncertain about their health and life 2.
Support groups are present for the parents of children diagnosed with Central nervous system Tumors. This provides you with an opportunity to talk with people who have had similar first-hand experiences.
Relationships formed with the cancer care team impart a sense of security during treatment, and people miss this source of support. This can be especially true when new worries and challenges surface over time, such as late treatment effects, emotional challenges including fear of recurrence, sexual health and fertility concerns, and financial and workplace issues. Every survivor of Brain Tumor has individual problems and challenges. With any challenge, an excellent first step is recognizing your fears and talking about them.
Also Read: Vanishree Acharya (Brain Tumor survivor)
Effective coping of Brain Tumor requires the following:
- Thinking through solutions
- Understanding the challenge you are facing
- Feeling comfortable with the action you choose
- Asking for the support of others
Children who have brain stem glioma can improve the quality of their future by following instructions for good health into and through adulthood 3, such as
- Limiting alcohol
- Not smoking
- Managing stress
- Eating well
Regular physical activity can help reconstruct your strength and energy level. The health care team can provide an appropriate exercise plan based upon your needs, physical abilities, and fitness level.
- 1.Worrell SL, Kirschner ML, Shatz RS, Sengupta S, Erickson MG. Interdisciplinary Approaches to Survivorship with a Focus on the Low-grade and Benign Brain Tumor Populations. Curr Oncol Rep. Published online January 20, 2021. doi:10.1007/s11912-020-01004-8
- 2.Lovely MP, Stewart-Amidei C, Page M, et al. A New Reality: Long-Term Survivorship With a Malignant Brain Tumor. Oncology Nursing Forum. Published online April 24, 2013:267-274. doi:10.1188/13.onf.267-274
- 3.Crom DB, Li Z, Brinkman TM, et al. Life Satisfaction in Adult Survivors of Childhood Brain Tumors. J Pediatr Oncol Nurs. Published online July 15, 2014:317-326. doi:10.1177/1043454214534532