Bile Duct Cancer Survivorship (Cholangiocarcinoma)

Executive Summary

Survivorship begins immediately after the diagnosis of cancer. The individuals under treatment and whose disease conditions are cured after the treatment are referred to as the cancer survivors. Survival is considered one of the most challenging aspects of bile duct cancer, as everyone has unique conditions as per the disease’s severity. The survivors have experience emotions of concern, relief, remorse, and terror during their cancer journey. After undergoing bile duct cancer treatment, the survivors have survived with, through, and beyond the tumor diagnosis. Patients and their families may experience powerful emotions after the treatment, including excitement, concern, relief, guilt, and dread. Coping with such emotional distress has been known to be the primary goal of survivorship. Recognizing the difficulties that your family is experiencing, solution-oriented thinking, requesting and accepting help from others, and feeling at ease with the course of action that the family takes are some of the most common coping effective necessitates. The treatment survivorship serves as a solid motivation to initiate healthy changes in lifestyle and maintain good health and live a cancer-free life.

Survivorship in Bile Duct Cancer

What exactly is the term “Bile Duct Cancer Survival”?

To different people, the term “survival” denotes other things. The following are examples of common definitions:

After treatment, there are no symptoms of cancer.

Living with, through, and beyond cancer is a difficult task. Bile Duct Cancer survivorship, according to this concept, begins at the time of diagnosis and continues throughout a person’s life ​1​.

One of the most challenging aspects of having cancer is surviving. It is because everyone’s situation is unique. To lower the risk of recurrence or manage cancer as a chronic condition, some people continue to undergo cancer treatment for a long time.

Joy, concern, relief, remorse, and terror are some of the overwhelming emotions that survivors may experience. Following a cancer diagnosis, some people feel they have gained a greater acceptance of themselves and have a greater appreciation for life. Others become highly concerned about their health and unsure how to cope with day-to-day living.

When survivors’ frequent visits to the healthcare team stop the following treatment, they may experience some anxiety. Relationships with cancer care providers often provide stability during treatment, and patients miss having this support. It is especially true when additional concerns and challenges emerge over time, such as late treatment side effects, emotional obstacles such as fear of recurrence, sexual health and reproductive problems, and financial and career concerns.

Every Bile Duct Cancer (Cholangiocarcinoma) survivor has its issues and difficulties ​2​. Recognizing and discussing your worries is a beautiful first step in any challenge. Coping effectively necessitates:

  • Identifying the problem, you’re up against
  • Solution-oriented thinking
  • requesting and accepting help from others
  • Being at ease with the path of action you’ve chosen

Joining an in-person support group or an online network of Bile Duct Cancer survivors is beneficial to many survivors ​3​. It allows you to speak with others who have had comparable first-hand experiences. Other ways to get help include talking to a friend or a healthcare team member.

Individual counselling is available.

Inquiring for help at the learning resource centre of the facility where you were treated.

Caregivers’ roles are evolving.

Family members and friends may go through transitions as well. A caregiver plays a critical role in helping a cancer patient by giving daily or as-needed physical, emotional, and practical care. Many caretakers get obsessed with providing this support, especially if the treatment lasts months or years.

However, as Bile Duct Cancer treatment progresses, the caregiver’s position frequently shifts. Eventually, the demand for cancer-related care will decrease dramatically.

A fresh way of looking at your health

Survival serves as a powerful drive to adopt lifestyle adjustments for many people.

People suffering from bile duct cancer are recommended to adhere to recognized health guidelines, such as not smoking, consuming moderate amounts of alcohol, eating well, and managing stress. Regular physical activity can aid in the recovery of strength and energy. Based on your needs, physical ability, and fitness level, your health care team can assist you in developing an effective exercise plan.

It is critical to get recommended medical exams and testing to maintain your health.

Consult with your medical team to create a Bile Duct Cancer Survivorship care plan tailored to your specific requirements.


  1. 1.
    Okazaki T, Ajiki T, Shinozaki K, et al. [Long-term survivor of unresectable bile duct cancer complicated with sclerosing cholangitis treated with chemotherapy]. Gan To Kagaku Ryoho. 2014;41(12):1542-1544.
  2. 2.
    Okabe H, Chikamoto A, Maruno M, et al. A long survivor with local relapse of hilar cholangiocarcinoma after R1 surgery treated with chemoradiotherapy: a case report and literature review. surg case rep. Published online July 4, 2016. doi:10.1186/s40792-016-0195-9
  3. 3.
    Miyata T, Okabe H, Chikamoto A, et al. A long-term survivor of hilar cholangiocarcinoma with resection of recurrent peritoneal dissemination after R0 surgery: a case report. surg case rep. Published online October 16, 2017. doi:10.1186/s40792-017-0386-z